We're starting Epidiolex! Wait, no we're not! Wait, yes we are! Wait, no we're not!

It's been a while. Here's what's been going on.

We fortunately made it through the night with nothing worse than an extremely unhappy cranky toddler who can't comfortably breathe...

Here’s what it looks like when we prep for what could be a long night. M has been running low fever alongside some sniffles and a cough...

Ah, fish. The source of so many good fats, and the source of such a strong taste that it can be a bit of a battle with young kids to eat...

A few days ago, a woman on Twitter posted about her experience the previous evening. (Here's the easy-to-read version she blogged later)...

Easter is coming up and while my daughter was easy to shop for, M is obviously another issue. I figured I can make sugar-free gummy...

Hi! Those of you who are actually connected to me in real life may know me from such hits as “losing my job and health insurance while...

Because we are a bi-national family we have family and friends literally all over the world, and regular air travel is a fact of life for...

This is currently one of M’s favorite meals in the rotation and it’s pretty easy to play around with the ratio. Credit to Smitten Kitchen...

(Note: added ingredients for 2.5:1 ratio on 7/15/2019) After those blueberry muffins I'm feeling invincible about experimenting with...

The therapeutic keto diet is very high in fat, and it's important to vary the types of fat - so like, not all animal fats. Plant-based...

(Note: added ingredients for 2.5:1 ratio on 7/15/2019) I'm feeling pretty damn proud of myself right now. It's all well and good adapting...

We're of course going to put everything we've got toward the new 2:1 ratio for M, but I can't help but be a little disappointed that...

You may have noticed it’s been a little quiet lately. The last four weeks have been pretty long. First, M had pneumonia, which came with...

During that weekend in the hospital with M when they decided to do genetic testing and I discovered Dravet Syndrome, even as I was on an...

We'll be doing the Boston Epilepsy Walk in May in support of Epilepsy Foundation New England. If you're in the area, please consider...

M's dietician alerted me to the existence of Fathead Dough, which is a low-carb dough using lots of cheese that can be used in keto diets...

I’m not sure how we ended up here, but I somehow made a deal with my daughter that if it was actively snowing (or if it had snowed enough...

I came across the Neebo wearable recently and joined their mailing list to be alerted when they went to pre-orders, and just got the...