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The long night


Here’s what it looks like when we prep for what could be a long night.


M has been running low fever alongside some sniffles and a cough today, which means we’re on high alert tonight. We’re dosing with alternating ibuprofen and tylenol every three hours, he’s had a dose of his clomazepam bridge we use for extra help when he’s sick, and he’s wearing his FeverScout temperature sensor. We’re all set up in our room with the pack’n’play in case we feel we need to monitor him more closely during the night than we can when he’s in his room, and the setup in the image above is his Diastat pens and several suppository doses of Tylenol and ibuprofen to have close at hand by his changing pad.


We’ve got alarms set to take turns getting up every three hours for his medicine, and if we’re lucky, those will be the only interruptions all night.


Tomorrow, he’s already booked in with his pediatrician to check to see whether this cold, like so many others he’s had, is evolving into an ear infection.


There’s not much we can do to prevent anything from happening, but preparation to deal with any seizure activity quickly and effectively is key to avoiding the worst outcomes.


It’s funny what something as simple as a toddler’s cold has become.

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2 Comments


mfitzy5
May 03, 2019

Mikell I am so intrigued by M's challenges and how you manage them. Glad your night was uneventful!

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mfitzy5
May 03, 2019

You got this Mikell! Way to protect M. Keeping fingers crossed for quiet night

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